So Long, Soft Walls
I was chatting with my mum on the phone earlier and she told me my gran had had an offer on her house. She moved in with my parents at the start of August and has settled in well so she’s decided to sell up.…
I was chatting with my mum on the phone earlier and she told me my gran had had an offer on her house. She moved in with my parents at the start of August and has settled in well so she’s decided to sell up.…
A couple of days ago I momentarily trapped my finger in my wheelchair’s footplate the result was a sizable blood-blister on its tip.
Earlier today I had a ‘ticcing fit’ and, as often happens, I lost my speech. Fortunately I’m still able to communicate ‘Yes’ and ‘No’ using the blinking technique, and most of my support works can tell how much pain I’m in by the noises I’m making.…
Leftwing Idiot and I were on a bus earlier when two police officers got on. The presence of police often leads to an increase of potentially inflammatory tics. My brain instantly latches on to all the things I shouldn’t say and my poor impulse-control means I start saying them.…
It’s Leftwing Idiot’s birthday today, we’re all celebrating, and I’m feeling a great relief as well.
I’ve written loads of times before about how difficult it is to retain the element of surprise when my neurology’s determined to reveal my secrets.…
Disabled people are always coming up against barriers. Often they’re physical like a step that’s too high, a broken lift, a cluttered toilet or a poorly thought out display But other barriers are to do with attitude, and a quick look at the Twitter hashtag #Heardwhilstdisabled will give you a flavour of the sort of comments and judgements disabled people are regularly faced with.…
Last night Zoë and I popped to the Gowlett where Leftwing Idiot was DJing. He’s been playing there for years and it’s always a nice way to spend a Sunday evening. The bar staff always make me feel very welcome so I feel comfortable there, even when I’m having a ‘ticcing fit’.…
After work yesterday Poppy and I went for a quick drink at a trendy bar that’s just opened near the castle. We sat in a nice spot by the window, but the table was very low.
This lack of height was a problem because my arm tics make it hard for me to hold a glass safely.…
As the season turns and autumn starts shuffling in I’ve been in a reflective mood. I don’t know what I’m going to write in this post – I don’t know if I can coherently express the frustration, anger and sadness that I’m feeling at the moment – and I’m not sure if I can un-muddle the mix of things I’m experiencing.…
In the cab home from work last night I had a mild ‘ticcing fit’ during which I made some forceful and repetitive movements with my arms. The fit ended quite quickly, but this new movement hasn’t stopped.
It’s not the worst new tic that could’ve arrived, but it’s definitely going to take some getting used to if it sticks around.…
A few days ago an invitation dropped into my inbox that was impossible to refuse. It was from the South London Gallery (SLG) inviting me to a Noise Summit. As a dedicated noisemaker there was no question about whether or not I should go.…
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