Name Calling
Leftwing Idiot and I had an unusually long wait for my fracture clinic appointment this morning. We sat in the large waiting room chatting away while a steady stream of staff marched in calling out other patients’ names, but not mine.…
Leftwing Idiot and I had an unusually long wait for my fracture clinic appointment this morning. We sat in the large waiting room chatting away while a steady stream of staff marched in calling out other patients’ names, but not mine.…
A few days ago I wrote about my strange obsession with pig stickers. Well, it seems that the Pig Fairy’s been listening because this evening, during a ‘ticcing fit’, I mysteriously ended up with a pig sticker on my jumper.
Leftwing Idiot and Poppy are keeping quiet about this, but I have inside knowledge which suggests they may both have been issued with pig stickers.…
I popped into my local shop earlier to get a drink.
It’s a big shop with level access and wide aisles, but despite this when I left I felt frustrated and annoyed.
The aisles would be plenty wide enough for my wheelchair but for the fact that there are always boxes of stock on the floor making them too narrow for my wheelchair to pass along.…
At work we run a programme for schools called ‘Play-based learning.’ School groups can book a series of visits during which they take part in exciting creative activities and have some time for free play as well. The aim of the sessions is to help improve children’s confidence and communication, through play.…
I’ve written a lot about my on-going quest for pigs, the highly customised dog toys that I’m given by the mysterious Pig Fairy whenever I have a day without a ‘ticcing fit’.
A couple of months ago I wrote about the acronym PPD, which stands for ‘Potential Piggy Day.’…
I remember very clearly the first event for people with Tourettes I ever attended. It was a Tourettes Action meeting held one evening in a hall in central London. Up until then I’d never met or spoken to anyone else with Tourettes, and the only people I’d seen with tics were on TV.…
I saw an interesting post on Facebook a few days ago by a fellow wheelchair-user. She was describing all the things she stashes away down the back of her wheelchair seat, and how one of these things, a pin, had worked it’s way down from the seat onto her electric wheelchair’s battery.…
Over the last week or so I’ve had a cold, which has meant I’ve been having more ‘ticcing fits’ than usual. This in turn means I haven’t had any Piggy Days (days without fits). But I’m sure the mysterious Pig Fairy who customises these rubber dog toys and turns them into magical rewards has welcomed the break and the opportunity to catch up on the backlog.…
I’ve written before about ‘Tourettes Mums’, the amazing mothers who fight tirelessly for their children who tic. But battling for your child day in, day out is physically and emotionally demanding. Here’s one mum, guest blogger Hayley Davies-Monk, describing her family’s struggle with their local school, and her search for positive aspects of their situation:
When Touretteshero asked me to write a guest post I was in a place where I just could not find any positives in our situation.…
As regular readers will know, verbal communication gets extremely tricky for me during a ‘ticcing fit’. I almost always lose the ability to speak and have to switch to a blinking system in order to communicate.
That being said, I do occasionally say some things during a fit, but they’re never very useful or relevant.…
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