Late the other night I was having a ‘ticcing fit’ on my way back to the castle. My body was completely locked up and I couldn’t move – my eyes were open but all I could see was a small patch of cloudless night sky.…

Leftwing Idiot and I were in town together last week. As we approached some charity collectors he said “Get your cloak of invisibility ready.” This is how we jokingly refer to the fact that when I’m out and about I very rarely get asked for donations, given flyers, or offered the chance to change my telecoms company.…

Last night Chopin and I performed a shortened version of our show Backstage In Biscuit Land as part of an event organised by The London Brain Project. They work with artists, neuroscientists, and the general public on collaborative projects that explore the brain through the arts.…

Today NESTA, a charity dedicated to supporting ideas that can help improve lives, together with the Government’s Office for Disability Issues and Innovate UK, an organisation for funding, supporting and connecting innovative businesses, all joined forces to launch the Inclusive Technology Prize.…

As well as being a part-time superhero and working one day a week for Touretteshero, for four days a week I work as a project coordinator for a children’s organisation in London. My role covers three main areas:

1) Fundraising
2) Supporting volunteers
3) Developing new projects and services

I’ve worked there for four years and in that time I’ve:

1) Secured over half a million pounds in funding for the organisation
2) Supported over three hundred regular volunteers
3) Helped triple the services the organisation provides

I’m telling you this now not because I want to brag but to give you a sense of the work I do and because yet another Conservative minister has suggested that some disabled people are “not worth” the minimum wage.…

I had a very odd experience the other night when a dream and a ‘ticcing fit’ became intertwined. This has happened before but on this occasion it was particularly strange.

After the fit had finished I made a quick note on my phone about the dream and what had happened after I woke up.…

Autumn’s really here now. The trees are the colour of flames; the air feels cold when I wake up in the morning; helicopter seeds spin to the ground in flurries; soup’s back on the menu at the café near work. And I can no longer wear light colours.…

On Monday I was at Channel 4 scripting the announcements for my continuity shift yesterday. Leftwing Idiot and I both had stuff to put in the post, so at lunchtime I asked where the nearest Post Office was. One of my colleagues pointed us in the right direction but warned us that it was likely to be busy and chaotic.…

On Friday afternoon I sat in our sunny playground and cried. My colleagues were all busy doing their work in the office, but I couldn’t do mine – I was stuck on the phone to the Department of Work and Pensions (DWP), pleading with them to pay money owed to my employer for the cost of my support at work.…

I spent yesterday afternoon with my friends Laura and Hannah and their kids, at Hannah’s house. It was a lovely relaxed afternoon and it was great to catch up.

But it ended with an unexpected bang. Just before I left I went to the loo.…