When I was at work this weekend I was lucky enough to witness a moment that was both unremarkable and at the same time, so beautiful that I don’t know if I’ll be able to find the words to describe it.…

I have four wheelchairs: my heavy NHS chair, my everyday chair, my all-terrain chair for work and festivals, and a light-weight folding back-up-chair which I had to get when my everyday chair catastrophically broke last August.

As of yesterday not one of these chairs was in working order.…

Several times a day my tics intensify dramatically – I call these episodes ‘ticcing fits’ because they look seizure-like and need similar management. They have a number of distinct elements any or all of which may happen during any given fit.…

My possessions have quite a hard life. My tics mean that my things get dropped, thrown, bitten and squished much more often than other people’s. This means I seek out robust tic-proof items wherever possible.

Take my smart phone for instance – I’ve had one for many years, and right from the start I realised it was going to need some heavy-duty protection.…

When I was a child my dad used to say I needed shoes made of iron because of how quickly I managed to destroy them. I never really understood his concern but I’m starting to have some sympathy with him now.…

I wrote yesterday about having had a bad day and feeling sad. It was a spectacularly miserable day, but some of what I was feeling wasn’t completely new. For example, over the last few weeks or even months there have been lots of times when I’ve felt lonely.…

Today’s the start of my fifth year at the castle, and that means it’s now the longest I’ve lived anywhere since I left home. I love being here, so it’s strange to remember how reluctant I was to move out of my original lair back in 2011.…

I’m one of an estimated 11 million people in the UK who are disabled. We make up about a fifth of the population. But despite this it’s very rare to see or hear issues that affect me as a disabled person reflected in the media.…

First of all, Happy New Year!

However you marked the arrival of 2016, I hope your celebration was happy and enjoyable. Mine certainly was. I spent the evening at a pub where Will’s band Brasstermind were performing. Sophie, Eoin and Rachel were all there too, as well as lots of other people I know.…

At midnight tonight the fifth year of Touretteshero will draw to a close. Back at the very start of 2015, when we launched our birthday survey, I promised that during the year we’d celebrate our anniversary. But it’s been such a busy year that we never quite managed to fit our birthday party in.…