Monthly Archives: January 2019

The Festival of Rest & Resistance

I’m really excited to announce The Festival of Rest & Resistance – a ground-breaking inclusive festival of theatre, art and performance for all ages – which showcases the very best of the UK’s disability arts scene at Battersea Arts Centre … read more

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Pad Ripping Fun

I’ve written a few posts about my on-going bladder issues and about how wearing pull up incontinence pads helps me manage this and feel more confident.

There’s one slight issue though. It’s not their bulkiness or the fact that some … read more

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Pad-emonium

A few weeks ago I wrote about my tricky appointment with the local continence nurse. I was there to get a prescription for pads to help me manage some of the issues I’ve been having with my bladder. Towards … read more

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Ninety Layers of Me

Back in October we were in Inverness working with young creatives on Hacks For The Future, it was brilliant but the days were pretty exhausting both physically and mentally and in the evenings my pain was often very intense. … read more

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The Bean Diary

I started working with disabled children in 1999 so I’m celebrating twenty years this year. For some of this time I worked in Lambeth’s Child and Adolescent Mental Health Service (CAMHS) in the Autism and Complex Needs Intervention Support Teamread more

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St Annes, Sand and Santas

My mum’s from Lancashire, her mum was from Lancashire, and so was her mum and her mum before that. Pretty much all my mum’s relatives still live there, just outside Blackpool, in and around Lytham St Annes.

I was … read more

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“By The Power Of #Hashtags”

Online activism can be powerful, as campaigns like #MeToo and #OscarsSoWhite have demonstrated. Hashtags like these can be especially useful in highlighting the shared experiences of a particular group and creating space for solidarity to be given and received. Crucially … read more

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Waiting Room Highs

At the end of last year I wrote about being laughed at and mimicked while in a hospital waiting room. Today at the same hospital I had a completely different and very lovely experience chatting to two women who were … read more

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Workplace Adjustments

I’ve written a lot over the last year about my increasing pain and decreasing energy. I’ve shared my concerns about the impact on my work, but I’ve not talked about the adjustments we’ve been making so I can keep … read more

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The Tale of the Table and the Tortoise

At work today I had a ‘ticcing fit’. I lost all regular speech but my vocal tics continued. Much to my surprise and that of my colleagues a strange story emerged. Here’s my Tourettes-generated fable:

“There was a table … read more

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