I went swimming with Claire and Poppy this evening at the local hydrotherapy pool as I do most weeks. During our swim, and somewhat predictably, I had a ticcing fit. But despite the fit I felt incredibly peaceful, floating on my back in the warm water and staring up at the bright moon through the glass ceiling. I felt like this because I knew Claire was supporting me, and because my fits are much less painful when I’m in the water.

Even so I kept insisting that the fit was over long before it really was, and that I was ready to carry on swimming. Poppy pointed out that this could be tricky because one of my legs was stuck out of the water at a right angle like a shark’s fin.