I’ve never written an online dating profile. I did start one once but found the mix of expectation, self-promotion, and the pressure to be funny overwhelming. So, I abandoned the idea. But I’m also finding writing this post, which has some similar qualities, quite daunting.…

So that’s another year done! In just a few hours we’ll say goodbye to 2023 and welcome in the New Year. For the Touretteshero team, 2023’s been a year of contrasts. We’ve had incredible moments of joy, making and touring new work and becoming an Arts Council England (ACE) National Portfolio Organisation (NPO), and Biscuitland was nominated for a BAFTA!…

I’ve had a new tic for the last few weeks. It’s frequent and consistent and leading to lots of conversations, some intense, some interesting, and some challenging.

This new tic is: “Long live Palestine, long live Gaza.”

This is a tic.…

I’m tired, in a deep kind of way. On its own this might not seem noteworthy because I experience fatigue and energy-related barriers every day. But this tiredness is different because although my body is physically drained, my mind, heart and spirit are energised in new and joyful ways.…

I love wheelchairs! I love what they’ve made possible for me and I love sharing what I’ve learnt about them with others. I even wrote an A-Z of everything I know about wheelchairs. That post is very detailed, and it might be a bit overwhelming to someone new to using a chair, but I also hope that it’s useful.…

Over the last couple of weeks, the Touretteshero Team has been resting and relaxing, the Christmas holidays being the only time each year that we all stop together. This has given me a chance to think about everything we’ve done together this year.…

We’ve been interested in technology focused research and practice for a long time. In 2013, Touretteshero collaborated with Dr Tom Mitchell and Dr Joseph Hyde on The Alchemy of Chaos which converted a year of ticcing episodes into music that was presented at a TEDx talk at the Royal Albert Hall.…

In the early days of Touretteshero I met a well-known actress who was researching Tourettes for a role in a film. We met in a pub near where I live. At the time it amused me that we were both accompanied by our personal assistants (PAs).…

Today is Global Movie Day, which makes it an appropriate time to share a film made by talented young artist and film maker Anton (AKA Born 2B Different). I’ve known Anton for years and it’s been a joy to see his creative work develop and grow.…

Almost every year since starting Touretteshero we’ve made a funny Christmas video. My favourites include this animation and this royal message. Last year we kept things simple and shared a heartfelt message of solidarity.

When it came to writing this year’s message, I just wanted to say what was on mind – the unchecked COVID-19 infections and the reality that those of us with additional risk factors are being left behind.…