This morning I woke up in a leisurely way, opened my blind and let the light from the grey day fill my room. I felt much more cheerful than I had when I went to sleep last night, and I greeted the lamppost enthusiastically.…

When we arrived in our hotel room a few days ago the two beds looked quite different from one another. Both were single beds and covered in the same sheets – this was clearly a twin room – but one was higher and had a safety rail running along one side.…

The sky’s an intense light-blue turning to a watery yellow on the horizon. Jagged palm tree leaves cut into the picture making a mish-mash of zigzag patterns that even the most exuberant 90s fabric designer would’ve be proud of.

The hotel courtyard is quiet, lit by a warm yellow light.…

Dear friends and family, you might want to change your WhatsApp settings so they don’t show the last time you were active. That’s because I’ve taken to using it as a way to find company when I’m awake in the middle of the night.…

I’ve been incredibly lucky to go all over the world with work, including to Australia, Canada, Bosnia and the United States, but although I’ve done a load of travelling I haven’t actually been on a proper holiday for over a decade.…

I’m not sure if or when this post will make it onto the website. I’ve not got a lot to say and what I do have is pretty vague and personal. But I feel compelled to write, so I’m just going to go with my instinct and start…

Leftwing Idiot’s supporting me tonight – he’s just lifted me gently off my commode and slid me back into bed.…

Last year Leftwing Idiot bought me some lavender spray to help me sleep.

My overnight support workers often spray some on my bed as I settle down to sleep and I often refer to them then as my Lavender Fairies.

Last night was a bad night for me – kept awake by pain I struggled to sleep.…

While we’re here in Portland, Leftwing Idiot, Lily and I are sharing an apartment-sized hotel suite. I wrote the other day about the difficulties I’ve been having weeing and the bladder stimulating device I’ve been given to try out.

During the night in our temporary new home I had a close shave, almost literally!…

Yesterday we flew for the few hours it takes to get from New York City to Portland. This is our first time in the state of Oregon and we passed over snow capped mountains and dense forests on the way. The city’s nestled in an extraordinary landscape with ribbons of trees extending into the outskirts.…

I’ve written a fair bit recently about my wee troubles. I’ve been going to the toilet all the time. It’s frustrating enough during the day, but at night it’s horrible and adds a whole extra dimension to my sleeplessness.

When I had my bladder scanned recently they found it was twitching and moving about without me asking it to (much like every other part of my body).…