I’ve just come through to my bedroom to go to bed. The main light was off already and my bedside light was glowing gently. Two Baclofen tablets were laid out ready for me to take, one at midnight, one at 6am.…

I woke feeling strangely tense and have felt the same almost all day. There was no particular reason for it and it made me gloomy and irritable. But this evening something happened that broke this feeling – but it also broke my wheelchair.…

I’m on a train on the way back from Cardiff. I was performing there yesterday at the Unity, an amazing inclusive arts festival. I’ll write about it in more detail soon, but not going to be the subject of today’s post.…

The utter devastation I’m feeling today is indescribable.

But there’s little need to describe it because the disappointment, confusion and fear I feel is reflected in the faces, voices and status updates of everyone I know.

Just a few days ago I wrote a heart-breaking list of what the last five years of conservative government had cost us as a nation.…

A couple of days ago one of my tics took me aback and made me laugh with surprise:

“Scotch egg castle and the exasperated carrot.”

It wasn’t the content of the tic that made me chuckle but the fact that I pronounced ‘castle’ and ‘exasperated’ with a short ‘a’.…

Yesterday the clocks went forward. Tomorrow is the first day of our Easter playscheme at work, and today the sky is blue. But so am I. I woke up feeling sad, and this feeling’s grown throughout the day. This afternoon as I travelled back from town in a cab with Leftwing Idiot my eyes were heavy with tears that I was desperately trying to hold back.…

Carbon fibre may be five times stronger than steel, but it’s no match for tics!

Last night my much-loved wheelchair suffered a shocking break. I was out at a pub for my friend Lottie’s birthday and chatting to some friends. My leg tics pushed against the footplate, as they do hundreds of times a day, lifting my body slightly out of the seat.…

It was a relief to close my eyes and go to sleep last night – they were sore and tired from the tears I’d been shedding hours earlier.

This morning I’m in a reflective mood, determined to write about the circumstances that once again left me sitting at work with tears flooding down my cheeks while my non-disabled colleagues got on with what they were doing.…

My jaw had become locked open and my body was twisted by spasms in my muscles. I was at home, on the sofa, cushions and padding everywhere, with a carer in the same room. I should’ve been feeling safe but instead I could feel fear mounting inside me as the seconds ticked – the carer standing silently next to me.…

On Friday afternoon I sat in our sunny playground and cried. My colleagues were all busy doing their work in the office, but I couldn’t do mine – I was stuck on the phone to the Department of Work and Pensions (DWP), pleading with them to pay money owed to my employer for the cost of my support at work.…