A PAT on your back
I had another long, distressing ticcing fit at work this afternoon. It was more severe than any I’ve had in a while. It happened while I was working at my desk and I suddenly found myself stuck on the floor underneath it.…
I had another long, distressing ticcing fit at work this afternoon. It was more severe than any I’ve had in a while. It happened while I was working at my desk and I suddenly found myself stuck on the floor underneath it.…
I had lunch with Leftwing Idiot and Sophie in the park today. We sat on a small hill and enjoyed a long-awaited glimpse of sunshine. During lunch I started having a ticcing fit and it turned out to be quite a long one.…
At the end of last week I had my wheelchair tweaked. After persistent problems with wheels falling off and poor manoeuvrability I took it to the wheelchair clinic to be looked at. William the wheelchair wizard took it away for a couple of hours and brought it back a reformed character.…
The weather this morning wasn’t promising. The sky was thick with grey clouds all looking heavy with rain. It didn’t look like a great day for a picnic. But by the time we were ready to leave the clouds had given way to glorious sunshine.…
I’ve described before how much worse my ‘ticcing fits’ get when I’m not well. They become more frequent and intense and I need constant care. This puts a huge additional pressure on whoever’s looking after me.
Last time this happened Leftwing Idiot wasn’t well either.…
Over the last seven days my amazing support team have offered their perspectives on Tourettes and on being carers. I’ve been touched by their thought-provoking, honest and funny accounts of their role in my care.
Bunny, Poppy and my sister all said they wished someone would write a post about them.…
The final guest post for National Carers Week is written by my wonderful sister.
I am Fat Sister, Touretteshero’s only sibling and King Russell’s long-suffering wife.
I can’t remember Touretteshero ever expressing an opinion on biscuits as a child. Most of her tics then were physical and a fair number were directed at me, including elbow-biting, hair-pulling, and one particular incident involving a banana being squashed into my face.…
The sixth guest post for National Carers Week is written by my brother-in-law – King Russell.
I am King Russell. I know Touretteshero because for twelve years I’ve been ‘going out’ with her sister – Fat Sister – and we’ve recently got married.…
The forth guest post for National Carers Week is written by my flatmate Poppy.
I have to admit, before meeting Touretteshero my main knowledge of Tourettes Syndrome, similar to lots of people’s, was that it involved uncontrollable swearing.
The first couple of times I met her I didn’t really know how to deal with her tics.…
Today’s post is written by Bunny – it’s the third of seven guest posts I’ll be sharing to mark National Carers Week.
My name is Bunny (aka “Bunsies”, ticced suggestively in a frisky old man voice).
I first met Touretteshero several years ago, before she discovered her superhero powers.…
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