Walking on Water
The other day I touched on the frustration I’ve been feeling with my limited mobility, and how much I longed to go for a walk. My tics currently make this impossible as they make my legs move about all over the place.…
The other day I touched on the frustration I’ve been feeling with my limited mobility, and how much I longed to go for a walk. My tics currently make this impossible as they make my legs move about all over the place.…
I’ve just finished watching Channel 4’s documentary ‘The Town That Got Tourettes’. It was about a group of young people in Le Roy, a town in upstate New York who suddenly developed severe tics.
I first heard about this cluster of cases at the start of this year, following a flurry of media attention.…
I had a wobble today. Not just the physical type (that’s a very regular occurrence) but a more noteworthy emotional wobble. In the last few days I’ve written quite dispassionately about my year of ‘ticcing fits’. I’ve got used to suddenly having my day interrupted by my flailing limbs and loss of speech, and as I described yesterday, it’s become much easier to manage all this.…
I’m writing this in a slightly unusual location – sitting on a train. Leftwing Idiot and I have spent the day hanging out with friends in Nottingham. Now, as we speed back to London through the dark countryside, it seems like a good time to reflect on our day.…
I frequently lose my speech when I have a ‘ticcing fit’, and when this happens I usually communicate by blinking – one blink for ‘Yes’, two blinks for ‘No’ and multiple blinks for ‘Ask a different question.’ It’s not a brilliantly reliable method of communication given how much I tic-blink anyway.…
It’s my fitiversary. Exactly a year ago today I woke up having a ‘ticcing fit’, and I’ve had at least two a day ever since. As I got dressed this morning I reached for a pair of tracksuit bottoms, but immediately decided against them because they didn’t seem suitable attire for a fitiversary.…
I started writing this post in the early hours of yesterday morning. I was feeling tense and restless and initially I couldn’t work out why, but my mind kept coming back to my wheelchair. Two weeks ago I wrote with joy about collecting my new chair from NHS Wheelchair Services.…
This Sunday’s going to be my one-year Fit-iversary. For the last 363 days, at least twice a day, and often many more times, my tics have increased in intensity to the point where it looks like I’m having a seizure. I don’t lose consciousness, but my body contorts violently, I lose the ability to speak and people who aren’t familiar with what’s happening start to look worried.…
A few weeks ago I was interviewed by a journalist from The Times interested in finding out about people’s reactions to being told they had Tourettes. He’d been inspired to do this by the experience of a colleague whose child was in the process of being diagnosed.…
Every day for over two and a half years I’ve written in this blog about my life with Tourettes Syndrome. When I started I worried that I’d run out of things to say, but I soon realised this wasn’t going to happen because my experiences are so varied –tough, surreal, and often very funny.…
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