A week ago I left the castle with my support worker and got on a bus into town. It was a warm Saturday morning so waiting at the stop was no hardship. It was a good job it wasn’t because three buses went by before one came along where the wheelchair space was free and we could get on.…

A couple of days ago the renewal form for my Disability Living Allowance (DLA) arrived in the post. I was relieved to see they were for DLA because it meant I wasn’t yet on the list to be assessed for the controversial new Personal Independence Payment (PIP).…

Yesterday was another packed day at the Southbank’s Unlimited Festival. I decided to sample Unlimited Voices, a series of panel discussions and debates on subjects relating to disability and art.

The talk I went to was called Talking Dirty: Disability and Desire.…

After we’d been to the theatre last night Will and I went to a Thai café in Waterloo. We had to wait for a table but I’ve been there before so knew it would be worth it.

When we were seated we studied the menu carefully.…

I’ve spent today at the seaside – Littlehampton to be precise. We took a group of children from work on end of summer trip. From the moment we arrived I knew we’d have a great day. The atmosphere was friendly, the staff at the small fairground were laidback, and there’s a lovely little beach, which I became a lot more closely acquainted with than I’d anticipated.…

This afternoon I let out a gasp of frustration and shouted, ‘Arms, stop being dicks!’ Moments later I apologised to them, but they’re really behaving badly at the moment.

The other day I mentioned my new elbowing-things tic: walls, tables, doors, the bath, other people.…

We got back from Shambala in the early hours of this morning, and I went straight to bed. Several hours later I woke up to a very rainy London, feeling exhausted. I’d been planning to go to Notting Hill Carnival and Eoin was coming to pick me up in the early afternoon.…

I had lunch with Bunny, Fran, Pete and a load of other people, sitting on the grass, bathed in sunshine, with the sound from the main stage of an incredible harp player drifting over hundreds of other people all having a lazy lunch too.…

The sun’s been out for most of the day and Shambala’s looking beautiful, with people in colourful costumes everywhere. I’m not doing a show today so I’m able to relax properly.

Captain Hotknives did have a show though, a solo set in the Wandering Word tent.…

We’ve been in Edinburgh for a week now, and I’m settling into life in a new city.

One of the things I was finding difficult to imagine before we arrived was how each day would pan out, what support I’d need and when I’d need it.…