The accessibility of buses has been in the press a lot recently because of the High Court case about wheelchair spaces and how much responsibility bus companies have for ensuring that wheelchair users always have first claim on them, ahead of people with buggies.…

I’ve been under the weather for the last few days and it’s meant I’ve been having more ‘ticcing fits’ than usual.

I woke up having one in the early hours of this morning although if you’d heard what my tics were saying you might’ve got a different idea about why Will, my support worker, and I were up at 4am.…

I’ve just re-read the post I wrote on New Year’s Eve exactly a year ago and it reminded me what a decidedly rocky start I’d had to 2014. On Boxing Day last year the muscles in my hands unexpectedly and very suddenly seized up.…

My jaw had become locked open and my body was twisted by spasms in my muscles. I was at home, on the sofa, cushions and padding everywhere, with a carer in the same room. I should’ve been feeling safe but instead I could feel fear mounting inside me as the seconds ticked – the carer standing silently next to me.…

I’ve finished work for a bit and at last I’ve got time to attend to all those little jobs that’ve been building up over the last few weeks.

I’ve done a load of filing, pumped up the tyres on my wheelchair and re-organised the bathroom cupboard, and the castle’s had a festive clean.…

I’ve had a ‘ticcing fit’ during the night every night this week which means my sleep’s been very disrupted, leaving me exhausted and achy. So this evening I decided I’d have a bath to help me relax and feel ready for bed.…

In the last couple of weeks I’ve been working on a big funding bid at work for our inclusion project. In the process I’ve looked at a lot of research by some great organisations and it got me thinking about all the fantastic groups and services that have helped me and the families I support.…

On Friday, Bunny, Fran, Jolie and I saw an incredible piece of theatre, Hopelessly Devoted, at the Roundhouse in Camden. The play, written by Kate Tempest, is moving, funny and thought-provoking. The characters are brilliantly drawn and the performances totally absorbing – I’m so glad I saw it.…

Yesterday afternoon I had a very intense ‘ticcing fit’ during which much of my body became tight and twisted. The fit also featured my horrible choking tic, which would certainly be a strong contender for the most unpleasant tic I’ve ever had.…

This week is Anti-bullying Week so it was very timely that an email popped up from Touretteshero supporter Courtney, proposing a guest blog about bullying. I’m going to hand over to Courtney now so she can share her thoughts and ideas on the subject.…