Earlier, something Leftwing Idiot and I were doing at work overran by several hours. This left us both hungry and annoyed and as a result we got cross with each other. As we headed out to get some food I could tell he was fed up.…

It’s been a long day after a tough night.

I’ve been fighting a cold for the last week or so and my ‘ticcing fits’ have increased as they often do when I’m under the weather. They’d been reasonably manageable until the early hours of this morning but then they suddenly escalated.…

After work this afternoon I sat in the garden with Bunny and Leftwing Idiot. It was a beautiful evening. The three of us had our feet in large buckets of cold water while we chatted. Midway through a conversation a fit started and I silently curled over and tipped forwards.…

Yesterday I wrote about how thoroughly I’d cleaned my wheelchair after the festival. What I hadn’t realised was how broken it was.

I went for a hospital appointment this morning and the constantly falling-off tyre and squeaky wheels made getting around on pavements almost as tricky as being at the festival in the mud.…

I’m back at home this evening after a great weekend. I’ve been thinking about some of the big and small acts of kindness that made it easier for me to enjoy the festival. Here are my top five heroes:

Two Mystery Men
Following our epic battle to reach the main stage last night my wheel chair was very muddy.…

I woke up this morning in a hot tent. I pulled myself out into a gloriously sunny day, leaving Poppy and Zoë sleeping inside. Fat Sister was busy doing some morning clearing up which included a bit of wheelchair maintenance.

Last night I lost a tyre in the mud.…

One of the situations in which I feel most frustrated about my restricted mobility is when I hear amazing tunes – I really miss being able to dance properly.

The wheelchair has improved this somewhat but dancing sitting down just isn’t as satisfying as the real thing.…

For several days my sister and her friend Claire have been puzzling over the exact dimensions of the boot of Claire’s car – specifically whether you can fit a folding wheelchair into it. This evening we put all their careful calculations to the test.…

Tomorrow I’m off to Secret Garden Party which is a three-day outdoor music festival in Cambridgeshire.

My friends Harry and Ollie are getting married later this year and the festival is where Harry’s chosen to have her hen do. Fat Sister, Poppy and our friend Zoë are going too: they’ll be my main support team.…

I was chatting to my boss this afternoon about Saturday’s party. I asked if her son who’s five had, had a good time. I’d seen him a number of times throughout the day and he’d always been doing something different and seemed to be constantly on the go.…