I’ve just re-read the post I wrote on New Year’s Eve exactly a year ago and it reminded me what a decidedly rocky start I’d had to 2014. On Boxing Day last year the muscles in my hands unexpectedly and very suddenly seized up.…
It’s Christmas morning at the castle. There’s a cheerful clattering coming from the kitchen and a sizzling sound as Fat Sister makes bacon sandwiches. And I can hear the rustle of King Russell packing Christmas presents into bags, ready to go into the car.…
I’m sitting on my bed to write this post. To my right I can see the garden bathed in wintry sun. To my left is my wheelchair with the remnants of the fake snow from our Christmas video-shoot last month still clinging to its upholstery.…
Unless you’re particularly grumpy at the moment you must’ve got caught up in the festive spirit, even if only a little. I’ve been working hard getting Christmas cards out and posting people their orders from our shop.
I’ve also been putting some finishing touches to this year’s Christmas video and I’m pleased to say it’s looking great.…
On Friday, Bunny, Fran, Jolie and I saw an incredible piece of theatre, Hopelessly Devoted, at the Roundhouse in Camden. The play, written by Kate Tempest, is moving, funny and thought-provoking. The characters are brilliantly drawn and the performances totally absorbing – I’m so glad I saw it.…
I don’t expect you need me to remind you that Christmas is nearly upon us, but in case my daily #festiveoutburst hasn’t jogged your memory, let me spell it out — there are only 18 days to go until Christmas Day!…
We’re speeding towards the end of November so Christmas is just around the corner. The festive period’s been on my mind a lot recently because we’ve been working flat out to get this year’s Touretteshero Christmas card printed and ready to go in time.…
Happy Halloween! It’s late but we’ve still a few hours left before the plastic bats and fake cobwebs get put away for another year. As I write, at home in my warm bed, I’m getting occasional glimpses of the big trees outside my bedroom window.…
Today NESTA, a charity dedicated to supporting ideas that can help improve lives, together with the Government’s Office for Disability Issues and Innovate UK, an organisation for funding, supporting and connecting innovative businesses, all joined forces to launch the Inclusive Technology Prize.…
As I mentioned in my post the other day there’s no doubt it’s now autumn, but for this post I’m scrolling back six months from October, to April – April 12th, to be precise. It’s a date that’s sharply etched on my memory, partly because something amazing happened on that day, and partly because it was a day for which we’d been preparing for a very long time
It was the day of ‘We Forgot The Lot’, when over three hundred people with and without Tourettes came together to take over and transform Tate Britain.…
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