Earlier, something Leftwing Idiot and I were doing at work overran by several hours. This left us both hungry and annoyed and as a result we got cross with each other. As we headed out to get some food I could tell he was fed up.…

It’s been a long day after a tough night.

I’ve been fighting a cold for the last week or so and my ‘ticcing fits’ have increased as they often do when I’m under the weather. They’d been reasonably manageable until the early hours of this morning but then they suddenly escalated.…

After work this afternoon I sat in the garden with Bunny and Leftwing Idiot. It was a beautiful evening. The three of us had our feet in large buckets of cold water while we chatted. Midway through a conversation a fit started and I silently curled over and tipped forwards.…

Yesterday I wrote about how thoroughly I’d cleaned my wheelchair after the festival. What I hadn’t realised was how broken it was.

I went for a hospital appointment this morning and the constantly falling-off tyre and squeaky wheels made getting around on pavements almost as tricky as being at the festival in the mud.…

It’s a good job it was a hot day yesterday – it took me over three hours to clean my wheelchair and I got very wet in the process. It was satisfying finding lumps of mud in crevices I never knew were there, and squeezing them out like they were spots.…

I’m back at home this evening after a great weekend. I’ve been thinking about some of the big and small acts of kindness that made it easier for me to enjoy the festival. Here are my top five heroes:

Two Mystery Men
Following our epic battle to reach the main stage last night my wheel chair was very muddy.…

I woke up this morning in a hot tent. I pulled myself out into a gloriously sunny day, leaving Poppy and Zoë sleeping inside. Fat Sister was busy doing some morning clearing up which included a bit of wheelchair maintenance.

Last night I lost a tyre in the mud.…

One of the situations in which I feel most frustrated about my restricted mobility is when I hear amazing tunes – I really miss being able to dance properly.

The wheelchair has improved this somewhat but dancing sitting down just isn’t as satisfying as the real thing.…

For several days my sister and her friend Claire have been puzzling over the exact dimensions of the boot of Claire’s car – specifically whether you can fit a folding wheelchair into it. This evening we put all their careful calculations to the test.…

This evening something upset me. What it was doesn’t really matter, what interested me was that my tics didn’t overreact to the sadness.

The way I responded to feeling upset tonight was very different to the dramatic way I sometimes behave following trivial challenges or small emotions.…