A few weeks ago I wrote about the new Personal Independence Payment (PIP), the disability benefit that’s due to start replacing Disability Living Allowance (DLA) from April.
There are many big concerns about PIP, which appears to be being brought in with the main aim of cutting support completely for at least 500,000 disabled people and reducing the level of help for hundreds of thousands more.…
Tourettes has been in the media spotlight today, with features on BBC Breakfast, Inside Out West Midlands and in the Daily Telegraph.
The focus of these stories is a study being carried out at the University of Nottingham, where researchers are building maps of the brains of young people, with and without Tourettes.…
In just under two weeks time Poppy’s moving out of the castle and into a new house with Zoë and two other friends. Not having a flatmate will mean making some adjustments to my routine, and one big change will be that I’ll be here on my own for a lot more time.…
Everywhere I go my red bag goes too. It’s my emergency bag and contains everything I need when I have a ‘ticcing fit‘. One of the things in contains is a plastic wallet for the sheets my support workers use to record the time my fits occur and how long they last.…
This morning I got a call from a police officer who’d been looking at burglary patterns in our area over Christmas. He wanted to ask me about the attempted break-in at the castle on Christmas Eve.
I hadn’t spoken to him before so I explained that I had Tourettes and that I’d be making some unusual noises.…
Yesterday Leftwing Idiot described how my first day back in the office had ended with me leaving in an ambulance because I was having a long and painful ‘ticcing fit’. Not a great start to the week.
I was looked after very well by Fran, Leftwing Idiot, and all the staff at King’s.…
Today’s post comes to you from Leftwing Idiot:
I was at home working on some IT stuff with my dad this afternoon when I got a call from Fran saying Touretteshero, back at work for the first day after recovering from her tonsillectomy, was having one of her long and painful ‘ticcing fits’.…
I’m looking out of my bedroom window again, watching the blanket of snow get thicker and thicker as the day goes on. I’ve got a bit of a cold so I haven’t ventured out, but from my warm lookout inside the castle the scene outside is stunning.…
I’m quite house-proud and like to keep the castle clean and tidy, but my tics make it hard for me to do most of this myself.
Every Saturday morning, my carer stays a bit longer to do some cleaning and help me with other household tasks.…
Snow’s been falling at the castle all day and a gleaming layer of it is now covering everything. The sight of falling snow always gives me an exhilarating mix of excitement and anxiety.
The anxiety comes from how much harder it is to get about.…
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