Just over a week ago a new toothbrush arrived at the castle. This one didn’t belong to a new support worker – it was for me. And for a variety of reasons (excuses) it’s taken me a while to get round to using it.…

I felt strange this morning and I couldn’t work out quite what I felt, or why.

I didn’t feel ill, or tired, or gloomy. But after some reflection I pinpointed a little sadness with a bit of anxiety mixed in.

At lunchtime my thoughts returned to a familiar topic and I found the root of my strange mood.…

I have a seatbelt on my wheelchair. For me it’s essential because my body moves around unpredictably.

I’m having an on-going battle with my belt – it needs tightening all the time because it gets stretched out by some of my big full-body tics.…

‘Face-planting’ meaning landing face down in a plate of food should be a familiar enough subject to anyone who’s spent any time watching comedy clips on YouTube.

Today I’ve managed to face-plant into food – twice! Fortunately for me there were no cameras around to record these messy moments.…

Last month I wrote about being late for a meeting because of a bus driver refusing to let me on because there was a buggy in the wheelchair space. He simply kept the doors shut, said the space was “first come first served”, and drove away.…

It’s been gloriously sunny and this evening Will and I soaked it up as we went from work to a pub in Brixton, with him pushing his bike and me pushing myself in my wheelchair. We were off to meet our friends Bunny and Fran for a drink.…

For the last few days I’ve been ready, both mentally and physically, with all my packing done, to leave London and plunge into the busy, beautiful and often muddy world of Glastonbury.

This morning Fran, Will, Lottie and I packed the car with two tents, two wheelchairs and more glitter than four people could ever need, and headed for Somerset.…

Six months ago today (can it really be that long already?) I started the year with a special announcement – that 2015 is Touretteshero’s fifth year, and as part of the celebration I asked readers to complete our birthday survey. We wanted to take the opportunity to reflect, improve and set ourselves up for the next five years.…

A few days ago I mentioned the spooky goings-on in my bathroom. I described how my inflatable bath-lift (which helps me get in and out of the bath) had suddenly started inflating itself in the middle of the night.

This morning, as my carer Ana and I were in my bedroom getting my clothes ready for the day, we heard the unmistakable sound of the bath-lift inflating.…

Yesterday, as Will and I travelled back from the writing group at The Royal Court Theatre I started having a ‘ticcing fit’. We were in a cab and Will quickly moved closer, holding me so I was safe and comfortable.

My head was angled so I could see out of the window.…