At the end of last year I wrote about being laughed at and mimicked while in a hospital waiting room. Today at the same hospital I had a completely different and very lovely experience chatting to two women who were also waiting.…

I’ve had issues with my bladder for a long time, but just over a year ago they intensified. Since then I’ve been seeing a specialist neuro-urologist (neuro-uro), and with his help things have got a lot easier – particularly at night, largely thanks to using catheters at the end of each day to make sure my bladder gets a good empty.…

My chest-banging tic has been around for almost a decade. When it began, my chest bruised a lot and I tried loads of different ways of managing it. I tried restricting the movement of my arm, Habit Reversal Training and padding my chest, but in the end the most effective solution was to wear padded gloves.…

Happy New Year! We’ve made it to the end of 2018. For the Touretteshero team the year’s been crammed full of activity, events, touring and TV. As with most years there have been some incredible highs, and some painful lows as well.…

I’ve been staying with Fat Sister, King Russell and their young daughter Bean over the last few days.

Bean has lots of Duplo building bricks – in fact they used to be Fat Sister’s and mine. As a child I loved building towers and this picture shows Fat Sister and me with a particularly impressive construction.…

I’ve lived at the castle for just over eight years. I moved here because my previous lair was up lots of stairs and I had several accidents getting in and out. Even though it was obvious to everyone I needed to move, I still took some persuading.…

I had a support gap this evening and wasn’t able to find anyone to come and stay with me overnight. Thankfully my brother-in-law King Russell stepped in. He was looking after Bean, while Fat Sister was out with friends – he agreed to take me in for the night as well.…

From the moment she could crawl my niece Bean has been obsessed with my wheelchair, crawling all over it and using the wheels to pull herself up.

From the very beginning Fat Sister and King Russell have been very clear with her that it’s not a toy and that she has to ask before she climbs in.…

Last night we had our opening performance of Not I here in Berlin. The show went well and the audience seemed to enjoy it.

It was quite late when we finished and none of us had eaten so the whole team went to a nearby falafel place for a late-night dinner.…

I’ve just done something really difficult. It wasn’t learning a complicated text, performing in front of thousands or completing a cryptic crossword. And it wasn’t something that I feel proud of.

I pissed myself.

Or to be precise I deliberately urinated in my pull-up pad, and I’ve found this is actually much harder than I’d thought.…