I had a new carer this evening. She came from the agency that provides me with some of my support. She was friendly and kind and in the usual way, I took her through my care plan for when I have a ‘ticcing fit’.…
This morning I had a ‘ticcing fit’ while I was having a shower. I managed to turn the water off but I was stuck in the bath for a while before I could get the bath lift to make me level with the edge.…
Friday the 13th got off to an ominous start when I had an extra long ‘ticcing fit’ in the early hours of the morning. Thankfully this didn’t turn out to be a theme for the day. That was robots.
It was the last day of our Easter playscheme at the playground where I work.…
Since my ‘ticcing fits’ intensified six months ago I’ve spent very little time completely on my own. I have to have someone with me to make sure I’m safe, and while this means I get to spend time with lots of different people, I sometimes miss being alone.…
It’s the Easter holidays and the three projects I help run were buzzing today. Because it’s a playscheme week I was moving about between the sites more than usual, but I hadn’t taken my wheelchair.
Our adventure playground was having a messy play day.…
A while ago I made a recording of a short sentence I was trying to say during a ticcing fit and the tics were so intrusive it took me six minutes to get my words out. This evening I’ve spent 45 minutes writing about a new group of physical tics that are proving equally tricky.…
I woke up this morning feeling very refreshed after a long and satisfying sleep. It wasn’t completely uninterrupted as I did have a couple of ‘ticcing fits’ during the night. Despite that I had one of the longest and deepest sleeps I can remember in a long time.…
I woke up this morning sandwiched happily between Leftwing Idiot and Nez. It wasn’t a beautiful dawn chorus that woke us but the low roar of construction vehicles and the bustle of the builders who are building a new accommodation block for the pub where we’d parked for the night.…
This evening I ticced a tricky question, “If you had four words for the rest of your life, what would they be?” and I went on to answer my own question with a series of unusual choices:
“Teapot, Sex, Apricot, Lego.”…
During yet another ‘ticcing fit’ earlier, my arms contorted and my hands locked into a fixed position that happened to be over my tits so it looked and felt as if I was touching myself up. This made me and Leftwing Idiot laugh.…
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