I was moving about quite a lot during a ‘ticcing fit’ the other day and Zoë, who was supporting me, was struggling to keep my limbs under control. While this was going on I ticced “Whack Attack!” This is a children’s game in which little plastic heads pop up randomly from a board and you have to hit them back down with a plastic hammer.…

It’s been a tricky few weeks, mainly because I’ve not been well. Today I felt much better and I had some great news that’s cheered me up a lot too.

I’ve had confirmation from Access to Work that they’ll fund a Trekinetic all-terrain wheelchair for me, to make it easier and safer to get around at work.…

Yesterday I described a conversation I’d had with Zoë during a long ‘ticcing fit’, about the reproductive capabilities of lamp-posts.

That wasn’t the only important issue we covered. Another was the meaning of “Loaf doaf”, a tic I seem to say only during fits when Zoë’s with me.…

I had a long ‘ticcing fit’ in the early hours of this morning. To start with it was painful, but most of it wasn’t too bad – and my tics were being quite silly. One of the many strange ideas that emerged while I wriggled about on my bed was ‘family planning for lamp-posts’.…

I’m usually pretty lucky in terms of energy levels. My disability might mean I move about a lot and at times it can make it hard for me to sleep, but when I’m well I generally have good stamina.

At the moment though I’m not and I don’t.…

had a bit of an emotional melt down yesterday. In fact I had couple and they both revolved around the same thing – my support schedule. Since my ‘ticcing fits’ started happening every day nearly two years ago I’ve spent very little time on my own.…

A year ago today I went to protest outside the offices of the private healthcare company Atos – you’ll find more about that protest here. We were drawing attention to the inhumane Work Capability Assessment (WCA) that Atos administers on behalf of the Department of Work and Pensions (DWP).…

The hateful Bedroom Tax, which is forcing many disabled people who rent their homes from local authorities to pay more rent because they need extra space due to their disability, has been in the news a lot over the last few months.…

Today, I’m quite literally speechless: I’ve completely lost my voice again. It started to go on the way back from Shambala and has yet to return. I went to the doctor this morning and she said it’s the same virus I’ve been battling with for the last few weeks and that it wasn’t unusual for certain viruses to hang about for a long time.…

This morning at 9.30am my support worker arrived to take me to work. This is what happens most days and it isn’t usually a cause for particular excitement. But today my support worker was Leftwing Idiot.

He’s been away at the Edinburgh Fringe Festival for the last four weeks and it was absolutely lovely to see him.…