Without Wheels

On the way back from Shambala yesterday we stopped for a couple of breaks at motorway service stations. My wheelchair had been dismantled to fit into the very full car, so at both stops I was on my feet instead of my wheels.…

Post Shambala Post

What an amazing weekend! I’ve just got back to the castle after spending the last few days at the Shambala Festival. I’ve returned happy and relaxed, but with no voice.

For the last couple of days I’ve felt a bit under the weather again and I’ve had some long, strange fits, which is always an indication that things aren’t quite right.…

My Shambala - A Rough Guide

Today was the last day of Shambala Festival 2013. Shambala’s a creative, family-friendly festival that takes place near Market Harborough, and for the last three days it’s been my home.

Although this is only the second year I’ve been I feel I know it well.…

Back At Shambala

This will be a short post because hopefully, by the time you read it, I’ll be happily ensconced in a field in Leicestershire, whizzing about in my gold party chair and catching up with lots lovely people. In other words, I’m at the Shambala Festival.…

World of The Zodiac - Virgo

I can’t believe we’re already halfway through the astrological year! Here’s the sixth ticced World of the Zodiac horoscope – this time it’s Virgo.

There’s a mixture of sage and un-sage advice in this one (unlike all the others, which have been completely rational).…

Drawn to Penguins

I’ve described my tics’ strange obsession with penguins many times before. They’ve said a lot of things about penguins, said that my own hand is one, and made me laugh hysterically about them. For some reason I pay a lot more attention to penguin tics and enjoy them in a way I don’t with many others.…

A Two Head Hitting Loop

Ruth who also has Tourettes came to stay the other night to provide my overnight support. We were sitting together on the sofa watching TV when she started to tic, ‘Hit head.’ My arm instantly and obediently responded and I hit myself in the face.…

We’re Not Swearing At The Geranium

Leftwing Idiot’s been away at the Edinburgh Festival for three weeks and while he’s there I’m looking after his geranium at the castle. He was very wary of leaving it with me given our history, but at the halfway point of his time away it’s looking very healthy.…

Well Covered

Last week at work I had a ‘ticcing fit’. It started suddenly in the middle of a big group activity with loads of children around. My support worker Hannah and my colleagues were quick to respond. Fran, who’s previously provided me with a lot of support, was working that day and she came to help manage the fit.…

Penguin Hand

I was hanging out with my support worker Will the other day when I had quite a long ‘ticcing fit’ and Will eventually gave me my emergency medication. I’ve explained before that the mix of this and my regular medication, can make me quite giggly and silly.…