A Picture of Pain

A digital drawing showing a night blue sky and pain as a constellation. It has the words Pain Constellations written in script text across the top. In the centre is a blue sphere with white, black and light blue dots, surrounded by other brightly coloured shapes, linked together with black lines. They have the words point, burn, crunch, ache, twist, sliver, twinge and seed on them. In the background are other white dots and stars.

I’ve been using an iPad to draw with for just over a year. It’s changed my relationship with drawing and made the process much more enjoyable and less stressful for me – mainly because there’s an ‘undo’ button for when my arm tics cause chaos.…

Happy Birthday NHS

The National Health Service (NHS) is 75 years old today and this post is a celebration of the complicated, humane, and embracing service that’s looked after me for almost forty years. I can’t imagine what my life would be like without the NHS.…

Understanding The Risks

Image shows a digital drawing by Touretteshero of a diagram titled Disability & Risk in a time of pandemic. On a sky blue background, the diagram is broken down into 2 sections. On the left - ‘Virus Related’ which is coloured in purple and resembles the coronavirus. On the right - ‘Non Virus Related’ which is coloured in red. Shooting off from each of these sections are two subsections. On the left shooting off from Virus Related are ‘Medical Risks’ (which is circled in yellow) and ‘Social Risks’. The words ‘How Sick you are likely to get’ and ‘How likely you are to be exposed to the virus’ are below each respectively. On the right shooting off from Non Virus Related is ‘Medical Risks’ and ‘Social Risks’ with the words ’How seriously will your wider health be affected by lockdown measures’ and ‘How many barriers to the essentials of daily life are you likely to experience’ below each respectively.

Content warning: This post contains descriptions of medical and social risks affecting disabled people that you might find distressing.

I got a call from my local Council’s ‘COVID-19 Support Team’ today. They were checking in with me because I’m one of the 2.2 million people who’ve been identified as ‘clinically extremely vulnerable’ to COVID-19-19.…

Serena Bhandari - Flatmates: can’t live with them, can’t (afford to) live without them

Time in lockdown is passing very quickly and that’s great news because it means it’s now time for another guest post from writer Serena Bhandari. In this post she discusses the challenges of finding the right people to live with.

Over to you Serena.…

Three Years On And Nothing’s Changed

Three years ago today, on the morning of Wednesday 14th June 2017, the country woke to the news of a devastating fire at Grenfell Tower. Later we would learn that 72 people, 18 of them children, had lost their lives. I’ll be marking the anniversary of this tragedy by filling the castle windows with green light in solidarity with Grenfell United and all those affected by the fire.…

Serena Bhandari - Acceptance

Yesterday I wrote about a new series of blog posts we’ve commissioned by writer Serena Bhandari. I’m really excited to share Serena’s first post today.

My name’s Serena and this is the first in a series of guest blogs I’ll be doing for Touretteshero.…

Sharing Space

When I started this blog ten years ago, it was the first time since leaving school that I’d written in any significant way. Up until then I’d always thought of myself as someone who struggled with writing, and it wasn’t something I’d ever felt would give me confidence or joy.…

Consistently Significant Tree

Image shows a digital drawing by Touretteshero of one of the sycamore trees she can see from her bedroom window. The sycamore tree is a lush early summer green and the sky is cloudy with patches of blue. It is raining heavily with the following accompanying text: “When the rain stops, I expected to notice the quiet, but I didn’t, I noticed your noise. Leaves bouncing off each other as you’re ruffled by the wind.”

I’ve written a lot about the view from my window. It’s mainly been about the lamp-post which my tics often chat to as I’m settling down to sleep. I’ve also mentioned the trees, but generally just in passing. However, during lockdown they’ve become a constant reassuring presence, their massive bulk marking out the edge of my world.…

Longing And Lows In Lockdown

Over the last couple of days I’ve felt a lingering sadness. This isn’t surprising given that we’re living through a global pandemic, but there was a bit more to it than that – I just couldn’t quite work out what it was.…

Why We Should All Care

Since his first day in Number 10, Prime Minister Boris Johnson has been promising a plan to reform our ailing social care system. It’s something that successive governments have been promising for at least a decade, but so far, no workable proposals have been put forward.…