Click Clunk

I had a ‘ticcing fit’ at work when everything was being shut up at the end of the day. My colleagues came to help me get inside to somewhere safe. The main way into the nearest building was up a couple of small steps.…

Rave Bales

I’m feeling much better and am back at work after a week off. I’ll only be there for a couple of days though because on Thursday I’m off to another festival. I’m really excited about this one because so many of my friends are going.…

Dear Wheelchair

In a couple of weeks I have a wheelchair review meeting with the physio and technician from Wheelchair Services. We’ll talk about how the chair’s working for me and whether there’s anything that can make it even better.

Just over a year ago I wrote a post listing the pros and cons of getting a wheelchair.…

Ruby’s Baptism

My best friend Laura’s ten-month-old daughter Ruby is being baptised today and I’ve been really looking forward to it. Initially I’d been concerned about my tics interrupting and spoiling the occasion, but Laura wasn’t worried. She’d prepared the priest and made sure the church was accessible.…

Fifty Shades of Fit

I was off work again today because I’m still not well. Whenever I’m ill I have more ‘ticcing fits’ than usual and today was no exception. Poppy kindly stayed with me all day to make sure I was safe.

Fairly early on in the morning I had a fit that coincided with Poppy discovering a blog called Red Lemonade and in particular some brilliant posts reviewing the inexplicably popular ‘erotic’ novel ‘Fifty Shades of Grey.’…

Home Schooling

This morning when I woke up I felt a bit better than yesterday. Although I’d had a bad night’s sleep and still didn’t feel well, because I had some meetings arranged at work I decided I should go in.

Leftwing Idiot usually travels to work with me and he came round at his normal time after I’d assured him I was well enough on the phone.…

The Plan Comes Together

Yesterday I woke very early with a raging sore throat, and by the time I should’ve been getting up for work I’d already had six ‘ticcing fits’. I felt feverish and my head was aching relentlessly.

I knew that going to work wasn’t really an option, and that meant I wouldn’t have my support worker because Access to Work funds my weekday support worker.…

The Cushion Test

Sometimes it’s not absolutely clear to others whether I’m having a ‘ticcing fit’ or not. This afternoon Fat Sister demonstrated an interesting way of finding out – she threw a cushion at me.

It hit me full in the face and straightaway she jumped up and came to help me.…

Surprise Text

Leftwing Idiot and Poppy have been away at a festival for the weekend. Shortly after they left on Friday I got a text message from Leftwing Idiot that took me by surprise. It read:

‘If you get the chance to water the geranium some time that would be great.’…

Impromptu Audit

Last night I went to a local pub, The Rye Hotel. It’s a grand old building that sits opposite Peckham Rye Park. I’ve been there many times before but not since it’s recently changed owners and undergone a bit of a makeover.…