Rock and Roll

Thursdays aren’t traditionally the most rock-and-roll day of the week but I’ve gone about this one like a true rock star.

This morning while Leftwing Idiot was getting my wheelchair out of the cab at work, a ‘ticcing fit’ made me stage-dive out of the door and on to the curb.…

A Heroic Accessory

Leftwing Idiot hates it when I don’t plan ahead, and I’ve lost track of the number of times he’s told me, ‘Inefficiency is no one’s friend.’ For years he’s been trying to get me to be more organised about the small things in life like having my keys ready when I reach my door or giving him my freedom pass before we get on the bus so it’s ready for him to swipe.…

Leftwing Idiot Left Left-handed

Leftwing Idiot was providing my overnight care last night. He was quick to wake up and come to my aid when I was having a ‘ticcing fit’ in the middle of the night. Well, most of him was.

His right hand stayed asleep.…

Panic Shop

Fat Sister and I were hanging out together yesterday afternoon. We’d planned to go to the park but because it had clouded over we went for lunch in Brixton instead. After we’d eaten we went shopping.

I was keen to move myself about in my wheelchair so I could choose what I looked at and at what pace.…

Fits and Giggles

Leftwing Idiot and I were reminiscing earlier about a ticced song I used to sing on the subject of sheepdogs. Neither of us could remember the words, and unusually nor could my tics. Fortunately I’d written them down in this post.…

Buzzer Buddy

The other night I had a ‘ticcing fit’ in the middle of the night. My muscles had gone very tense and my body was so locked up I couldn’t press my buzzer to raise the alarm.

Thankfully my night time support worker heard the unusual noises I was making and came to help.…

Ducking and Diving

Today’s been a beautiful day. The sun was out, the air was warm and still, and it wasn’t hot or muggy. After a very productive morning and afternoon, my support worker Will and I set off to explore the nearby Burgess Park that’s recently been refurbished.…

Safe in the Firebox

Last night Leftwing Idiot and I headed into town for a night of comedy at the Bloomsbury Theatre. Mixing Tourettes Syndrome and live performance can have unexpected and volatile results so I’m extremely careful in choosing what to go and see and where to go and see it.…

Imaginary Menagerie

Even if you’ve only read a tiny bit of this blog, you’ll almost certainly know that my tics have a strange obsession with animals. Tics come and go, but there are always a handful of creatures that stick around, and get mentioned over and over again.…

I Care

I’ve just watched a new video made by Scope and Stephen Fry which challenges us to consider the power that just two words can have. The examples they use in the video include:

‘I’m pregnant’, ‘Marry me’, ‘You’re ugly’ or ‘That’s beautiful’.…