Dr Rebanus

For Christmas Leftwing Idiot got Fat Sister a very special gift – a new tic name. He’s been repeating this name regularly over the last few weeks, which has made it stick as a tic. Trying to programme me like this doesn’t always work and Leftwing Idiot hasn’t attempted it for years.…

Family History

This morning my uncle came to drop off some presents at the lair. We had a cup of tea and chatted about various things – including Tourettes. As a child he had tics and as a teenager he used to ‘squeak and flap’ as my dad describes it, so it’s strange I haven’t talked to him much about Tourettes before, given that it’s thought to be genetic.…

Titter

Leftwing Idiot and I went out this afternoon to pick up a few last minute Christmas presents. When we went into a small bookshop I was ticcing a “Hu” noise, and the woman at the till tittered and said, ‘Tu,tu,tu’ back.…

Pain In The Neck

Last week I had Botox injections in the back of my neck with the aim of weakening the muscles there and preventing my head tics causing permanent damage. But my neck’s more painful now than it was before.

It gets worse when I’m holding my head at a particular angle, like when I was wrapping Christmas presents with King Russell this evening.…

Sat Nav vs Tic Nav

Laura, who’s just passed her driving test, picked me up from the lair this evening and drove us to her house for dinner. Her Sat Nav wasn’t speaking its directions properly, so she said, “You’ll have to do it.” This was brave of her because although I’m a good map-reader, I have a real problem communicating directions intelligibly, something I’ve mentioned before.…

O2 Line 3

Tonight I went to see Shakira at the O2 Arena with Laura, Emma and her sister Lucy. The venue has a policy of removing the tops from all bottles inside the venue. They do this to make them less likely to hurt someone if they get thrown.…

Relaxed Reflections

I’ve been relaxing after yesterday’s event and the many hectic weeks of planning that led up to it. The party’s left me feeling exceptionally happy and I’ve been reflecting on the many fantastic things that happened and the great conversations I had.…

Heroes Turn Out

The world has been saved. Despite heavy snow, more than forty young heroes and their families made it for the first Touretteshero Superhero Party. The amazing Touretteshero support team provided a warm welcome and helped the children transform themselves into their superhero identities.…

“I’m so excited!”

I’ve ticced “I’m so excited!” several times today and it’s a pretty accurate description of how I’m feeling. I’m massively looking forward to welcoming all the new superheroes to the Touretteshero Superhero Party tomorrow. They’ll have a very important mission to complete.…

Excused

While Poppy and Leftwing Idiot went to get some food for dinner I went into a nearby shop to get the drinks. Another customer started taking the piss out of me, aggressively copying the screeching noises I was making. I asked, “Why are you doing that?”…