I stayed at Fat Sister and King Russell’s last night.

As King Russell headed upstairs I said goodnight, and then ticced, “Half of my mother is in your bed.”

I could hear them chuckling at this in their room. It was a nice sound to settle down to sleep to, even if the sentiment of the tic was somewhat disturbing.

In the last week there’ve been a lot of changes to my support schedule because my regular team have either been away or unwell. To my surprise, it’s not been too much of a problem – I’ve had different people helping me at work and I’ve been hanging out with Fat Sister and King Russell a lot in the evenings.…

When I was with King Russell this evening I had a ‘ticcing fit’. It was the type of fit that makes my muscles tense up and become rigid rather than thrash about. King Russell managed to unlock one of my arms and he looked very pleased with himself as he straightened it out and tucked it under my body to prevent it bending up again.…

When I was out shopping with Bunny this afternoon I had a baffling exchange with a sales assistant. While I was waiting at the checkout he pointed at my wheelchair and said: ‘Wow, is that a portable running machine?’

I was completely thrown by this.…

Last night I stayed at Bunny’s and we watched part of the Olympic Opening Ceremony with her parents. As usual my tics added extra commentary, shouting out suggestions and repeatedly squealing, “Amdram!” whenever an emoting actor came on screen.

There were a couple of points when my tics went into overdrive.…

Earlier, something Leftwing Idiot and I were doing at work overran by several hours. This left us both hungry and annoyed and as a result we got cross with each other. As we headed out to get some food I could tell he was fed up.…

It’s been a long day after a tough night.

I’ve been fighting a cold for the last week or so and my ‘ticcing fits’ have increased as they often do when I’m under the weather. They’d been reasonably manageable until the early hours of this morning but then they suddenly escalated.…

After work this afternoon I sat in the garden with Bunny and Leftwing Idiot. It was a beautiful evening. The three of us had our feet in large buckets of cold water while we chatted. Midway through a conversation a fit started and I silently curled over and tipped forwards.…

Yesterday I wrote about how thoroughly I’d cleaned my wheelchair after the festival. What I hadn’t realised was how broken it was.

I went for a hospital appointment this morning and the constantly falling-off tyre and squeaky wheels made getting around on pavements almost as tricky as being at the festival in the mud.…

It’s a good job it was a hot day yesterday – it took me over three hours to clean my wheelchair and I got very wet in the process. It was satisfying finding lumps of mud in crevices I never knew were there, and squeezing them out like they were spots.…