touretteshero.com is a place to celebrate the humour & creativity of Tourettes.
It’s not about mocking or commiserating - it’s about reclaiming the most frequently misunderstood syndrome on the planet and…
Changing the World One Tic at a Time
Back in February, I had the pleasure of announcing our Young Artists Development Programme – a new and exciting opportunity for disabled artists in the early stages of their careers, to develop and experiment with their creative practices. We’ve now selected the artists who we’ll be commissioning, and I’m excited to introduce them to you.…
I’m really excited to announce that I’m going to be one of nine guest curators for one of the Southbank Centre’s Summer Reunion taking place over the summer. With help from the Southbank, we’ll create an outdoor programme that reunites artists and audiences as they welcome back visitors.…
A couple of years ago I was in Portland, Oregon performing at a festival. We were over there for a couple of weeks and had an incredible time. This was partly because of the place and the people, but also because cannabis is legal in Oregon.…
While Bean is very curious and asks lots of questions, one thing she’s never asked me is why I use a wheelchair, she’s always just accepted my chair as part of me.
Since she was tiny, I’ve tried to find books or toys that include disabled characters because I want the things around her to reflect her world and family.…
As a child I loved Lego and it’s younger sibling Duplo. I was a proud member of the Lego Club – in fact 35 years on I still have my membership badge!
And I still love it, but as a dyspraxic with Tourettes, the fine motor control required for more grown up Lego projects has always been in scarce supply for me.…
Tomorrow I have a phone appointment with the pain clinic. I’ve been under their care for a few years since I began experiencing chronic pain probably caused by the long-term impact of my tics, and being a wheelchair user.
I haven’t had an appointment in quite a while because my pain is generally manageable thanks to a mix of medications and other approaches.…
It’s early Friday evening and London’s bathed in gentle sunshine and I’ve just had some spontaneous interactions with girls which were simultaneously blissfully mundane and soul-enrichingly exceptional.
Claire and I went to meet Bean and Fat Sister in the park after nursery.…
I’ve just had the best bath!!!!
No exaggeration – I’ve haven’t had a better bath in my whole life!
Better even than the shared baths my oldest friend and I used to engineer by rolling in mud at each other’s houses, better than the luxurious ones scented by bath bombs.…
Today I made a patient cry. B/c I told her that her pain was valid. B/c I told her that even though we don’t know the cause of her symptoms, we’ll still treat them. B/c I told her I wasn’t going to give up on her. B/c I told her she wasn’t alone. No one said that to her before.
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