touretteshero.com is a place to celebrate the humour & creativity of Tourettes.
It’s not about mocking or commiserating - it’s about reclaiming the most frequently misunderstood syndrome on the planet and…
Changing the World One Tic at a Time
Last March we launched our Practical Intervention Fund, which provided small items related to wellbeing and relaxation to deaf, disabled and neurodivergent people of all ages. It was the first time we’d run it and we provided items for over 50 people across the UK.…
I started working for Touretteshero just over a year ago. It’s been a busy and exciting time, but also an unusual one – because until a few weeks ago I’d never met any of the Touretteshero team in person! Now, though, I’m sat on the sofa in our lovely new office, where most of us work together.…
As I was drifting off to sleep last night, my tics were having their regular chat with the lamp-post outside my window. But unusually, rather than telling it off, they were asking it for wisdom. This got me thinking about the lamp-post as a lifestyle guru.…
One of the mysterious things about Tourettes is why certain words or noises become vocal tics. Anything I’ve ever known can become a tic, even things I’m not consciously aware of have turned up – I had to google: Alan Hanson, marmoset and whether Keith Duffy was allergic to peanuts.…
It was World Book Day a couple of weeks ago and primary school children across the land dressed up as their favourite characters, to celebrate the power of stories. This got me thinking about the books I loved as a child, and the stories about disability and neurodivergence which I looked for but never found.…
Joyce has been supporting me for around seven years now. She started as an agency carer but when that agency stopped supporting people in my area, she came to work for me directly.
Joyce is amazing – she’s patient, thoughtful, kind, funny, and an excellent cook.…
In 2018 we took my stand-up show to Portland, Oregon, for two weeks. In Portland cannabis is legal, and for the time I was there I was able to buy and use cannabis gummies that had a massive impact on my pain levels, tics, sleep and wellbeing.…
Yesterday was Sunday and early spring sunshine poured into the castle all day. I had a lovely weekend of haircuts with my family and joining Leftwing Idiot for a run round the park – typical restful weekend activities.
But there was one less restful activity, something many people don’t have to worry about: going through my Personal Health Budget form as part of my annual review.…
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