touretteshero.com is a place to celebrate the humour & creativity of Tourettes.
It’s not about mocking or commiserating - it’s about reclaiming the most frequently misunderstood syndrome on the planet and…
Changing the World One Tic at a Time
I’m a vulnerable adult.
I’ve been thinking a lot recently about what this means.
Maybe it’s because of the pandemic and how often the word ‘vulnerable’ is used: it’s gone viral. In this context vulnerability is presented as an individual problem.…
It’s New Year’s Eve, a time when we take stock of the year that’s been and look ahead to the next. Usually, I write a post about everything that’s happened, but this year I decided to represent it as a drawing instead.…
Tomorrow is Christmas Eve. I’ve got this week off, but I can’t relax quite yet because there’s a load of disability-related admin I need to complete. This includes doing the monitoring for my personal budget, emailing the occupational therapy team about a review, and calling Access to Work about some new equipment I need.…
Almost every year since starting Touretteshero we’ve made a funny Christmas video. My favourites include this animation and this royal message. Last year we kept things simple and shared a heartfelt message of solidarity.
When it came to writing this year’s message, I just wanted to say what was on mind – the unchecked COVID-19 infections and the reality that those of us with additional risk factors are being left behind.…
I’ve just about finished my Christmas shopping. It’s always a complicated process for me because I have to leave deciding who’s going to get what until the last minute so my tics don’t spoil the surprise. But this is obviously harder with very personal gifts.…
Every year since Touretteshero began, we’ve created a Christmas card inspired by a festive tic. We’ve had some amazing guest artists including Jim’ll Paint It, Amber Anderson, Ben Connors and Richard Phoenix.
We usually do a big mail-out and send cards to our partners, collaborators, friends, and allies, but this year we’re doing things differently.…
As you probably know, for the last couple of months we’ve been sharing the ideas and creative projects of artists supported by our Young Artist Development Programme. Today it’s the turn of Maria Bradley whose playful illustrations and insightful words communicate her experiences of tics – let’s meet Maria and tickles.…
I’ve been in a lot of pain this week, in fact not just in pain, but also feeling very sick, which is usually well managed by medication.
Pain and nausea aren’t great on their own, but the combination of both floors me.…
Lord Patel, please support this essential amendment to the #HealthandCareBill proposed by Baroness Bull to introduce a #ZeroCareCap to ensure disabled people of working age do not face catastrophic care costs @LordKPatel https://t.co/VbrPvTEglJ
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