touretteshero.com is a place to celebrate the humour & creativity of Tourettes.
It’s not about mocking or commiserating - it’s about reclaiming the most frequently misunderstood syndrome on the planet and…
Changing the World One Tic at a Time
Over the last couple of weeks, the Touretteshero Team has been resting and relaxing, the Christmas holidays being the only time each year that we all stop together. This has given me a chance to think about everything we’ve done together this year.…
Eleven years ago today, I collected my first wheelchair from NHS Wheelchair services. I’d been nervous about using one, but within hours it was clear what a difference it would make to my life, safety, and independence.
My first chair was basic, made of steel, very strong but super heavy.…
“Biscuit” has been one of my regular tics for many years. I don’t know exactly when it started, but by early 2011 I was very biscuity! I once worked out that I tic “biscuit” about 16,000 times a day, so unsurprisingly it’s a word that lots of people strongly associate with me.…
We’ve been interested in technology focused research and practice for a long time. In 2013, Touretteshero collaborated with Dr Tom Mitchell and Dr Joseph Hyde on The Alchemy of Chaos which converted a year of ticcing episodes into music that was presented at a TEDx talk at the Royal Albert Hall.…
After several weeks of nail-biting uncertainty, we found out this morning that our bid to become an Arts Council England NPO was successful!
The process of applying was long and complicated and we had to work hard to make sure our access requirements were met along the way – so the announcement today comes as a huge relief for us all.…
In the early days of Touretteshero I met a well-known actress who was researching Tourettes for a role in a film. We met in a pub near where I live. At the time it amused me that we were both accompanied by our personal assistants (PAs).…
For as long as I can remember, I’ve used drawing to help me explore my surroundings and make sense of the world. When I struggled to learn things in primary school I was encouraged to draw instead of write, and when I don’t understand something it’s to drawing I still always turn.…
I’m sad today. I feel worn out and worn down. I’m frustrated by the physical reality of my body and with how I’m dealing with it. In the last few weeks my energy levels have plummeted for no obvious reason, and they were already pretty low.…
Totaly relate to this excellent thread from @KTLGoldfinch
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