Oppositional Me
This is a post I need to write but you might not need to read – I’m going to discuss some of the complicated, distressing parts of having Tourettes, and if reading it feels too much at any point please stop or take a break.…
This is a post I need to write but you might not need to read – I’m going to discuss some of the complicated, distressing parts of having Tourettes, and if reading it feels too much at any point please stop or take a break.…
We’re on the eve of a big anniversary, but for me the end of this decade has special significance. Ten years ago, Touretteshero was born, since then everything’s changed, and I’ve become a radically different person. As the clock struck midnight on 31 December 2009, that incredible transformation was well under way.…
Back in 2015 Leftwing Idiot and I wrote a short relay play called Light Of My Life about the strange relationship I have with the lamp-post I can see from my bedroom window.
We mixed tics with chosen language without identifying which was which.…
I’ve tried to manage my tics a number of different ways over the years and one of the most effective for me has been through practical solutions and interventions that make life easier and safer.
Several years ago I did a round-up of all these interventions, and I often share it with others who might find it useful.…
Monday was my eighth fitiversary, eight years since the day when the seizure-like episodes of intense tics that I call ‘ticcing fits’ became a regular part of my life. They’d been happening on and off for months, even years, but I woke up one morning in October 2011 having one, and from then on, they started happening very regularly.…
When Monkey the cat first moved in he was understandably a bit nervous of my wheelchair, so much so that I teased Chopin about having an ableist cat. Since then he’s got used to the chair and in fact he’s thoroughly embraced disability culture.…
Over the last fifteen years or so I’ve read quite a few research articles on Tourettes, many of them focused on the effectiveness of various treatments. Recently we were contacted by a researcher with a very different area of interest and it felt to me like an exciting and intriguing area of investigation.…
It’s the first day of October which means it’s also the first day of Inktober. This is a creative initiative started by artist Jake Parker back in 2009 in an attempt to improve his drawing skills. The idea was simple: 31 days, 31 drawings.…
I’ve lived alone at the castle since Poppy moved out back in 2013. That isn’t to say I’ve been completely on my own because a different support worker stays with me each night – I used to say this was like having a rolling flatmate.…
Disclaimer: I’m not writing this post alone. There’s a heavy weight lurking on my chest, vibrating relentlessly, and occasionally batting my face for asnmyu,uuuuu attention. My vibrating companion also keeps stepping on the keyboard…
Introducing Monkey the cat. Monkey is Chopin’s cat and he’s come to stay for a bit.…
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