Monthly Archives: January 2018

Devoted, Disgruntled, Invigorated

In January 2014 I was having a tough time. I’d recently developed dystonia in my hands, which made it hard for me to use them. I had to learn to do things in new ways, like pulling my trousers up read more

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Bed Day Breakthrough

I’m not very well today, but acknowledging that, and saying I’m ill, is something I find hard to do.

I’m used to identifying as ‘disabled’ within the context of the Social Model. To me, saying I’m a Disabled Person … read more

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The Elephant Penis In The Room

Just after Christmas my friend Lottie told me about a product she’d seen at a trade fair – a wearable hot water bottle. She thought it might be useful in helping me to manage the pain I’ve been having … read more

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Not So Ninja

Yesterday I wrote with pride about my stealthy stair-climbing skills as I crept past my niece’s room while she was asleep.

In the morning Fat Sister brought me a slice of peanut butter on toast. Because she’s my sister she … read more

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Ninja Training

Because lots of my support workers are still away after the holidays I’ve had a few more gaps in my support than normal. Fat Sister and King Russell have stepped in to help, and last night I went to stay … read more

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In Celebration Of Social Workers

A couple of days ago I got an unexpected call from my Local Authority’s Adult Social Care Community Review Team (what a mouthful!) The woman I spoke to was very friendly and explained that she needed to visit me to … read more

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Medication’s What I Need

Because of the chronic pain I’m experiencing, which I’ve written about a lot recently, I’m under the care of my local pain clinic and my GP, and I’ve got a range of medications to help me manage the pain.

There … read more

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