Monthly Archives: August 2012

Time For Some Action

I took the day off work today. It wasn’t because I was ill or had a relaxing holiday planned but because I wanted to be at a protest against the drastic cuts to disability and sickness benefits that are putting … read more

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Rummage!

It’s taken some time but I’ve got myself a new regular tic. It comes out with a mischievous intonation in a slightly silly voice. Although I still say “Biscuit” a lot, my sentences are now punctuated with “Rummage” … read more

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The ATOS Games

This evening is the opening ceremony of the 2012 Paralympics, which looks set to be an impressive and widely enjoyed celebration of disability sport. It’ll showcase incredible athletes and hopefully promote discussion of issues affecting disabled people amongst a … read more

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Lost For Words

Over the last few months I’ve had a handful of episodes where I lose my speech, but without having any of the usual motor tics associated with a ‘ticcing fit’. I know exactly what I want to … read more

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Carnival 2012

I woke up in a bad mood – it was probably a mixture of tiredness and post-Shambala blues. Throughout the morning I got increasingly frustrated with my lack of independence and I was taking every opportunity to feel sorry … read more

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Sunday at Shambala

I did my first ever festival gig this morning with Captain Hotknives in the Shambala Radio tent. It’d been quickly arranged following our impromptu performance in the camping field yesterday. I enjoyed letting my tics take to the stage, and … read more

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Bob the Amazing Sheepdog

I drifted awake to find our tent warm from the early morning sun. After I’d got myself together Fat Sister and I went in search of some breakfast. When we’d eaten we headed to where Leftwing Idiot and Poppy are … read more

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Struggling For Words

After spending the day wondering about the festival generally, I made a firm plan for what I wanted to see this evening. I was keen to catch two things: The Sheffield-based band Bison, and the poet Kate Tempest.… read more

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Welcome to Shambala

I made a dramatic entrance to the Shambala Festival earlier, with an ambulance escorting me right onto the site. While we were queuing to get in I had a ‘ticcing fit’ in the car and by the time … read more

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Sticky Back Biscuits

Tonight’s been a strange mix of frantic packing and sticky-backed creativity.

The reason for both is Shambala where I’m heading tomorrow. It’s likely to rain, so there’ll be lots of mud, and I’ve tried to pack sensibly with this in … read more

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