In the early hours of this morning I woke with a start. I’d been dreaming I was in a house with Fat Sister. It was my house, although it wasn’t the castle. We were in the bathroom and she was… read more
Cushions are one of the crucial safety features for me at the castle, loads and loads of them, including some shaped like biscuits and some like clouds.
I had a long “ticcing fit” in the early hours of the… read more
I’ve been enjoying something of a dip in the regularity and severity of my ‘ticcing fits’ in the last couple of weeks and one benefit has been a welcome increase in the number of uninterrupted nights sleep I’ve had.… read more
I woke up to a ‘ticcing fit’ at 4.00am yesterday morning, and for several hours afterwards I struggled to get back to sleep. But I was still awake when the birds started chirping, and inevitably, my tics had something… read more
This morning I woke from a vivid dream feeling foolish for taking a silly risk. It took me a moment to realise I’d been dreaming and that I wasn’t about to get told off by my friends for dangerous decision-making.… read more
It’s Saturday morning (although only just). I’m lying awake a little after midnight and I’m surrounded by much more noise than normal. There’s rain relentlessly beating down outside and I can hear the high-pitched squeal of water sloshing over gutters.… read more
I’ve mentioned previously the buzzer I keep strapped to my hand while I’m asleep so I can raise the alarm if I have a ‘ticcing fit’ during the night. I’ve also mentioned the recent reoccurrence of my read more
The other night I had a ‘ticcing fit’ in the middle of the night. My muscles had gone very tense and my body was so locked up I couldn’t press my buzzer to raise the alarm.
Thankfully… read more
Last night, as I tried to settle back to sleep after waking up for no particular reason, I started to shake gently. I wasn’t worried by this because it’s something I’ve done since childhood when I’m going to sleep. In… read more
It’s the middle of the night and I’ve opened my computer to write about a very unpleasant dream I’ve just had.
Here’s what happened:
Poppy and I were out shopping in town. We left my wheelchair outside a trendy… read more