Waving Calves

Everyone who’s ever met me knows I move about a lot! My motor tics (involuntary movements) are frequent, varied and for the most part very obvious. You can’t miss my constant chest banging, erratic head movements, wiggly spine, and… read more

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The Rubbish Idea Dream

I’ve written about dreams quite a bit recently, and I wrote last month about a new Inclusive Technology Prize I’m helping to judge that’s looking for enabling innovations for disabled people. The other day these two things merged… read more

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End of the World, End of a Dream, Start of a Fit.

I had a very odd experience the other night when a dream and a ‘ticcing fit’ became intertwined. This has happened before but on this occasion it was particularly strange.

After the fit had finished I made a… read more

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Over Reacting Dream

I woke up with a start yesterday morning after a strange dream.

I’ve described before in this blog how I sometimes overreact to tiny frustrations, and what woke me was an overreaction, but this time it was entirely imaginary.

In… read more

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Falling Awake

In the early hours of this morning I woke with a start. I’d been dreaming I was in a house with Fat Sister. It was my house, although it wasn’t the castle. We were in the bathroom and she was… read more

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Under a Cloud

Cushions are one of the crucial safety features for me at the castle, loads and loads of them, including some shaped like biscuits and some like clouds.

I had a long “ticcing fit” in the early hours of the… read more

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Stolen Lemon Manifesto

I’ve been enjoying something of a dip in the regularity and severity of my ‘ticcing fits’ in the last couple of weeks and one benefit has been a welcome increase in the number of uninterrupted nights sleep I’ve had.… read more

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The Birds

I woke up to a ‘ticcing fit’ at 4.00am yesterday morning, and for several hours afterwards I struggled to get back to sleep. But I was still awake when the birds started chirping, and inevitably, my tics had something… read more

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A Dream of Walking Again

This morning I woke from a vivid dream feeling foolish for taking a silly risk. It took me a moment to realise I’d been dreaming and that I wasn’t about to get told off by my friends for dangerous decision-making.… read more

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I Hear Thunder

It’s Saturday morning (although only just). I’m lying awake a little after midnight and I’m surrounded by much more noise than normal. There’s rain relentlessly beating down outside and I can hear the high-pitched squeal of water sloshing over gutters.… read more

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