Leftwing Idiot and I were at Tate Britain this afternoon, continuing with our preparations for We Forgot The Lot!’ While we were there I had a ‘ticcing fit’. It started just as I was… read more
The other day I described how I’d needed to make yet another trip to hospital after tipping my wheelchair over and fracturing my elbow.
The hospital staff were great – friendly, efficient and skilled. But I… read more
It’s been a bumpy start to the year so far but things have finally started getting back on track. My hands are doing much better and on Wednesday I was able to start using… read more
Last June I wrote about going to the dentist for a check-up – I explained that he’d decided my teeth needed a scale and polish but that it’d have to be done under sedation because I move around so much… read more
Yesterday got off to an upsetting start. My hands were stiff and unresponsive and I felt utterly worn out, both because I hadn’t slept much and because of the on-going uncertainty about my hands.
Poppy comforted… read more
Exactly a week ago I had Botox injections in my arms and they’ve given me back the use of my hands after they’d suddenly locked up on Boxing… read more
This morning Leftwing Idiot and I headed to the National Hospital for Neurology and Neurosurgery for an appointment with a specialist in treating Dystonia with Botox injections!
Some hours later we emerged in a slight daze… read more
It’s New Year’s Eve and a time when I usually reflect on the outgoing year – I’m going to save that for tomorrow.
Today I thought I’d share my trip to the National Hospital for Neurology and Neurosurgery.… read more
It’s 3:30am. After struggling for hours to get to sleep because of the pain in my hands, which inexplicably locked up yesterday, I eventually drifted off. When I woke up an hour later… read more
Writing this post feels like a race against time. Just before 11:00 this morning I started to feel a pins-and-needles sensation in my left hand. My thumb was strangely stiff and stuck to the side of my hand, I could… read more