This morning I took part in some research being conducted by the Movement Disorder team at the National Hospital for Neurology and Neurosurgery.
This study involves collecting data from the brain using an electroencephalogram, more commonly know as an EEG.… read more
Nearly every day for almost four years I’ve had episodes that I call ‘ticcing fits’ when my usual tics suddenly intensify and I completely lose control of my body and speech.
Although they look seizure-like and need similar management,… read more
Several years ago I started taking a muscle-relaxant medication called Baclofen and from the very beginning I noticed that I needed to wee more frequently and urgently. My doctors didn’t seem surprised by this and apparently it’s not an uncommon… read more
I’m on a train on the way back from Cardiff. I was performing there yesterday at the Unity, an amazing inclusive arts festival. I’ll write about it in more detail soon, but not going to be the subject… read more
On May 8th, in Brighton, I woke up to the crushing news that the Conservative Party would again be forming the next Government, this time with an overall majority. Straightaway I determined to turn my great sadness… read more
It’s been gloriously sunny and this evening Will and I soaked it up as we went from work to a pub in Brixton, with him pushing his bike and me pushing myself in my wheelchair. We were off to meet… read more
The general election’s just three days away and I can’t wait – I’ve never been so ready to vote. The last five years have felt like the longest years ever – they could’ve been five decades.
My life looks very… read more
So today Scotland’s deciding whether to remain part of the United Kingdom or to become an independent country. I’m not about to wade into the political debate about the referendum myself, but unsurprisingly my tics are quite happy to:
“Run… read more
Yesterday 50,000 people marched through central London carrying a peaceful but powerful message to the doors of the Houses of Parliament. Poppy and I were among them.
We were there with tens of thousands of other people in the shadow… read more
On June 28th last year I wrote about the start of something that wasn’t finally finished until today. What was this lengthy process? It was getting my teeth cleaned and polished by the special care dentistry team at my… read more