This morning I had the privilege of speaking to the Board of the London Ambulance Service (LAS) about Tourettes, my experiences of their service, and the NHS in general. The Board governs the whole of the LAS and it’s made… read more
I’ve written about swimming quite a lot recently, but please forgive one more watery anecdote – I realised last night I haven’t ever written about the reasonable adjustments the lifeguards at the pool make for my disability.… read more
The other day I wrote about my new snowboarding boots. They’ve made a big difference to my mobility and for the last few days I’ve been enjoying being more active both at home and at work.
My office is… read more
I’ve just bought some disabling boots – they’re the snowboarding pair mentioned the other day – and it’s my ankle tics they’re disabling, not me.
They arrived yesterday and so far I’m happy to report, they’re incredible. They’re so… read more
Three years ago I wrote about how I’d lost a wooden meerkat that I’d bought from a toymaker running a temporary stall outside the South Bank Centre. I’d bought it to keep in my pocket to fiddle with, in… read more
I spilt some water on myself first thing this morning and soaked the kneepads I wear to protect myself when my legs tic and I drop to the floor. I took them off, popped them into the wash, and… read more
A couple of weeks ago I realised with some alarm that I still have twenty days annual leave to use up by the end of March. I’ve been putting it off because when I’m not at work I don’t have… read more
It’s bitterly cold again. The temperature’s really dropped and snow’s been floating down intermittently all day.
I’ve been outside all day on a trip with the children from work to visit another adventure playground. But although I’ve been exposed to… read more
Since Poppy moved out a week ago I’ve been living on my own. The pluses to this are that my night support workers now have a proper bed and some private space, and I have more space generally, which… read more
A few months ago I went to get measured for a new pair of super-strong orthotic boots that’ll help protect me from my ankle-turning tics.
I’ve already had several pairs of specially reinforced boots, but they’ve always been ordered ready-made… read more