It was beautiful in London yesterday, warm and spring-like. On the way home the cab took a slightly different route from normal and went through an area where I used to live about eight years ago. We were weaving through… read more
Leftwing Idiot and I were at Tate Britain this afternoon, continuing with our preparations for We Forgot The Lot!’ While we were there I had a ‘ticcing fit’. It started just as I was… read more
What does Freedom look like to you?
That was the question that dropped into my inbox at the end of last year. It was in an email from a BBC team asking if I’d take part in Freedom… read more
Yesterday got off to an upsetting start. My hands were stiff and unresponsive and I felt utterly worn out, both because I hadn’t slept much and because of the on-going uncertainty about my hands.
Poppy comforted… read more
It’s generally frowned upon to go around taking pictures in public toilets, but yesterday when Leftwing Idiot and I were on our way to a meeting I came across this in the accessible toilet. So out came the phone for… read more
For a long time my erratic movements have made me a messy eater. I use plastic cutlery and a cup with a lid to help with this, but while my hands have been out of order I’ve… read more
This morning Leftwing Idiot and I headed to the National Hospital for Neurology and Neurosurgery for an appointment with a specialist in treating Dystonia with Botox injections!
Some hours later we emerged in a slight daze… read more
As my hands have stopped moving it’s time for some other movements to start in compensation. Yesterday Claire and I began making adjustments to the way things are organised at the castle and I’m… read more
There’s something in my living room that I’m finding upsetting to look at.
Every time catch sight of it, every time I think about it, and every time someone mentions it, I feel impossibly sad. It’s something that until three… read more
Last Christmas I wrote a post about my accessible Christmas essentials. One of the discoveries I shared was paper tape. This easy-to-tear alternative to regular sticky tape eliminated the need for scissors, which I can’t use safely, and meant… read more