This afternoon Leftwing Idiot and I went to a very special party. It was to celebrate ten years of the children’s charity Daytrippers.
Over the last ten years Daytrippers has helped nearly 20,000 disabled children to go on… read more
This post is about SWANs – not a long-necked member of the wildfowl family – although that might’ve been the natural assumption, given my penguin tirade the other day.
The SWAN I’ve been thinking about stands for Syndrome Without… read more
Last week I wrote briefly about watching Kids With Tourettes: In Their Own Words on ITV. The programme was thought-provoking and created a great deal of discussion on social media. Earlier this week I spoke to… read more
I’ve just finished watching the documentary I mentioned last week – Kids With Tourettes: In Their Own Words. I enjoyed it a great deal and at times found it very moving. I felt it gave… read more
Next Thursday at 9pm ITV will air a programme following the lives of three children with Tourettes. The children are all being treated at Great Ormond Street Hospital’s specialist Tic Clinic. The programme’s called Kids with Tourette’s: In… read more
Last night, as I tried to settle back to sleep after waking up for no particular reason, I started to shake gently. I wasn’t worried by this because it’s something I’ve done since childhood when I’m going to sleep. In… read more
Fran, Leftwing Idiot and I have just been at a training day on safeguarding disabled children. Part of it involved simulating a conversation with a child who has limited verbal communication.
The group was split into pairs, one person taking… read more
Tourettes has been in the media spotlight today, with features on BBC Breakfast, Inside Out West Midlands and in the Daily Telegraph.
The focus of these stories is a study being carried out at… read more
I haven’t seen Laura for weeks. I think this is one of the longest periods we’ve gone without meeting up in our fifteen years of friendship. A number of factors have conspired to keep us apart – my operation,… read more
Five days ago I waved good-bye to my tonsils and I’ve been resting at home ever since. I’ve got a reputation for not knowing my own limits and not stopping when I should, but on this occasion my throat’s… read more