Children

Happy Birthday Daytrippers

28th
April

This afternoon Leftwing Idiot and I went to a very special party. It was to celebrate ten years of the children’s charity Daytrippers.

Over the last ten years Daytrippers has helped nearly 20,000 disabled children to go on… read more

Leave a reply

Solidarity with SWANs

13th
April

This post is about SWANs – not a long-necked member of the wildfowl family – although that might’ve been the natural assumption, given my penguin tirade the other day.

The SWAN I’ve been thinking about stands for Syndrome Without… read more

Leave a reply

Dr Tara Murphy: In Her Own Words

2nd
April

Last week I wrote briefly about watching Kids With Tourettes: In Their Own Words on ITV. The programme was thought-provoking and created a great deal of discussion on social media. Earlier this week I spoke to… read more

Leave a reply

Tonight’s TV Tourettes

28th
March

I’ve just finished watching the documentary I mentioned last week – Kids With Tourettes: In Their Own Words. I enjoyed it a great deal and at times found it very moving. I felt it gave… read more

2 Comments

In Their Own Words

20th
March

Next Thursday at 9pm ITV will air a programme following the lives of three children with Tourettes. The children are all being treated at Great Ormond Street Hospital’s specialist Tic Clinic. The programme’s called Kids with Tourette’s: In… read more

1 Comment

Shaking and Stirred

8th
March

Last night, as I tried to settle back to sleep after waking up for no particular reason, I started to shake gently. I wasn’t worried by this because it’s something I’ve done since childhood when I’m going to sleep. In… read more

Leave a reply

Ahead of the Class

26th
February

Fran, Leftwing Idiot and I have just been at a training day on safeguarding disabled children. Part of it involved simulating a conversation with a child who has limited verbal communication.

The group was split into pairs, one person taking… read more

Leave a reply

Tourettes on the Brain

29th
January

Tourettes has been in the media spotlight today, with features on BBC Breakfast, Inside Out West Midlands and in the Daily Telegraph.

The focus of these stories is a study being carried out at… read more

Leave a reply

Two Friends, Two Under Twos and Tourettes Too

26th
January

I haven’t seen Laura for weeks. I think this is one of the longest periods we’ve gone without meeting up in our fifteen years of friendship. A number of factors have conspired to keep us apart – my operation,… read more

1 Comment

Shifting Sensations

8th
January

Five days ago I waved good-bye to my tonsils and I’ve been resting at home ever since. I’ve got a reputation for not knowing my own limits and not stopping when I should, but on this occasion my throat’s… read more

Leave a reply