Challenges

The Right Chair

Regular readers of this blog will know I need no excuse to write about wheelchairs. When it comes to wheelchairs I’m a woman obsessed, but it’s an obsession with a very valid origin. The right wheelchair gives me autonomy and… read more

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It Seems I Had a Fit

Nearly every day for almost four years I’ve had episodes that I call ‘ticcing fits’ when my usual tics suddenly intensify and I completely lose control of my body and speech.

Although they look seizure-like and need similar management,… read more

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Taking the Piss

Several years ago I started taking a muscle-relaxant medication called Baclofen and from the very beginning I noticed that I needed to wee more frequently and urgently. My doctors didn’t seem surprised by this and apparently it’s not an uncommon… read more

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Where Is The Justice?

I’m on a train on the way back from Cardiff. I was performing there yesterday at the Unity, an amazing inclusive arts festival. I’ll write about it in more detail soon, but not going to be the subject… read more

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Glastonbury - A Somerset Farm on Sunday

The rain was drumming gently on the tent as I slowly surfaced this morning and carefully stretched my stiff and tired body. None of us was in a rush to get up and by the time we were all awake… read more

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Glastonbury - Dazzling Sun and Dancing Lights

The tent was incredibly hot when I woke up and although it was early I could feel the heat of the sun through the synthetic fabric. I opened the flaps to let in a much-needed breeze and the daylight flooded… read more

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Glastonbury - Laughing, Dancing and a Splattering of Mud

Today started earlier than I’d have liked. It was 4:00am when I woke up having a ‘ticcing fit’. I was face down, in a sleeping bag, unable to move or make much noise. All I could manage was a… read more

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Glastonbury - Our New Home

For the last few days I’ve been ready, both mentally and physically, with all my packing done, to leave London and plunge into the busy, beautiful and often muddy world of Glastonbury.

This morning Fran, Will, Lottie and I packed… read more

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“Cats Not Cuts”

On May 8th, in Brighton, I woke up to the crushing news that the Conservative Party would again be forming the next Government, this time with an overall majority. Straightaway I determined to turn my great sadness… read more

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Chicken Knees

Ana, my regular morning carer, has been on holiday for the last few weeks, and Veronica, who’s supported me on and off for the last few years, has been taking her place to help me get washed and ready for… read more

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