It’s American Independence Day today and it’s strangely appropriate that I’ve had my personal budget review this morning. My personal budget is the amount of money I get from my Local Authority Social Work team to pay for the support … read more
Some people might see me as an ‘acceptable’ sort of disabled person. I work, pay tax and generally feel pretty positive about my life. But I’ll let you into a secret: this isn’t because I’m saintly or have an exceptional … read more
The hateful Bedroom Tax, which is forcing many disabled people who rent their homes from local authorities to pay more rent because they need extra space due to their disability, has been in the news a lot over the … read more
Organising my support over the last few weeks has sometimes felt like choreographing a never-ending relay race.
I’ve had to make sure there’s always someone to take over from the last person who’s been with me. It’s been complicated at … read more
Simple. You risk getting an on the spot fine of £80.
During June, Barnsley police are having a crackdown on swearing in public. I’m one of the 10% of people with Tourettes who swear involuntarily, so I took a particular … read more
I’ve had a reply to my letter of complaint to Transport for London (TfL) and I’m not sure how I feel about what they say.
While the letter was generally apologetic, I felt it made excuses for the behaviour of … read more
I’ve still not had a response to my letter to Transport for London. It’s been over two weeks since I wrote to complain about how I was treated by a member of the Underground staff at Old Street station.
Time … read more
I’ve been working late this evening so I’ve only just got back to the lair, and I’m feeling angry and depressed. It isn’t anything tic-related this time. It’s about a consultation meeting organised by the Council about cuts to services … read more
In January I wrote to Maria Miller, the Parliamentary Under Secretary of State for disabled people regarding the proposed changes to Disability Living Allowance (DLA). The only response I got was a standard photocopied letter from the Department of … read more
Earlier today I had my first session of Habit Reversal Therapy (HRT). I’ve been looking forward to doing this after years of battling for it. For HRT to work I need to keep my mind open and be ready to … read more